My brain tumor journey continues. September 20, 2011 was the most recent surgery. The healing process continues and I thank you for your support, friendship, laughter, and love. I am learning about daily chemo (not so bad) hemionopsias, and patience.

Tuesday, November 1, 2011

Another chapter

This post has been challenging for me.  Each time I sit down to write, the words just don't seem to be there.  Today marks the 6 week point post-surgery and it has by far been my best feeling day to date!  I am very thankful to be feeling stronger and ready to take on the next challenge.

Bend is going to be a great place for me to continue on my journey to increased strength, health, and FUN!  Over the past two weeks, I have been given the best treatment someone could ever hope for.  Rob has cooked every meal for me, trying to figure out what I would like on different days when my appetite was still on the fritz.  And did I mention, he is an amazing chef.  He has gone on extremely slow walks, helped me with my vision therapy treatment, challenged me to get stronger each day, and we've still had time to have a little fun.

One of the things I am most grateful for and that has helped me immensely is the acupuncture treatments Rob has been doing.  They have helped me to get my digestion on the right path, decrease the pain in my head, neck, and back, sleep, and feel more balanced over all.  Acupuncture is still fairly new to me and each treatment leaves me a bit amazed, and I love it.  Thank you!

And tonight is a moment that I have not really made public as I am not quite ready.  But there's no going back at this point.  I am starting Temodar (the chemotherapy of choice for brain tumors) tonight.  After talking with all of my doctors, we have changed the protocol from last time.  I am going to be starting a low dose regimen that is every single day.  It is supposed to be much better tolerated and based on my poor (and dangerously low blood counts from last time) we are hoping for an easier time with it. Yet still, the apprehension is there and I do not know what to expect.

Please continue to send me your positive energy, any anti-nausea energy you can afford to spare would be extra appreciated:-)  And now I am off to take some anti-nausea med's before the chemo.

1 comments:

Christie Koester said...

I'm so sorry you have to go through all of this. Ugh! I don't get it. I will be praying for you!!!! Hang in there.